Cerebral Palsy Info

Can Anyone Gimme Some Info About The Disease Cerebral Palsy?

New postby Nerissa » 27 Oct 2012, 13:09

Info such as organs and organ systems affected by disease, prevention, treatment, population affected, interesting facts, etc.

Please give me some sites for it as well. ASAP. thx
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New postby Calvin » 27 Oct 2012, 13:09

Cerebral palsy refers to nonprogressive syndromes characterized by impaired voluntary movement or posture and resulting from prenatal developmental malformations or perinatal or postnatal CNS damage. Syndromes manifest before age 5 yr. Diagnosis is clinical. Treatment may include physical and occupational therapy, braces, drug therapy or botulinum toxin injections, orthopedic surgery, intrathecal baclofen, or, in certain cases, dorsal rhizotomy.
Please see the web pages for more details on Cerebral palsy.
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Tell me some good sites besides wikipedia to find more...

New postby Tonie » 27 Oct 2012, 13:09

Tell me some good sites besides wikipedia to find more info on Cerebral palsy. ( I'm having to do a report.)
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New postby Gricelda » 27 Oct 2012, 13:09

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Any info on Cerebral Palsy?

New postby Scot » 27 Oct 2012, 13:09

Any info on Cerebral Palsy?
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New postby Ariel » 27 Oct 2012, 13:09

My son has CP - I'm not sure what your question is.
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Anyone Else out there have mild cerebral palsy .also any...

New postby Malia » 27 Oct 2012, 13:09

Anyone Else out there have mild cerebral palsy .also any info on botox therapy?

I haven't worn Braces since I was 11 & only walk with a slight limp. My mother is like insane she is always looking for these miricale cures.She thinks because some doctors are now using botox injections that I should try this. I like to make informed medical desicions. the muscles we use to walk & sometimes the way our bodys naturally try to help us balance is sometimes very different from others. I would think that if botox relaxes the muscles like they say I could possibly end up in a wheelchair short-term because they can't really control it they just inject it in small amounts. I am quite content where I am & have no problem with my CP. I know someone who had botox for other issues she cant sit near loud music because of vibrations. I mean sure I'd love to improve more & I'll admit my version of a cure is re-locating to mexico to avoid the cold lol. I have tryed to explain to her that I am happy I can walk, travel, live alone All I have is a limp and muscle pain.
use the term mild because most people I have met have quite sevre cases. Mine is mild & only affects my legs. I have small spasms in my feet and legs ocassionally and find cold weather very uncomfortable. Most people think I have hip problems or I am a little drunk lol. I have had 1 or more opperations every 18 months til I was 13. I am really one of the most mild cases I've seen. Any info on botox or any who has had it in this manner please comment
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New postby Vinita » 27 Oct 2012, 13:09

My 5 year old son also has mild CP. He walks with a limp, and I've been told by several doctors to try Botox injections in his ankles and feet.

I have come to the same conclusion as you did about the muscles relaxing too much and having a negative affect on my son. It seems logical that paralyzing the muscles in the feet and ankles would make it more difficult to walk.

Although I have not contacted a specialist about my concerns, I'm sticking to what I think about Botox, and just remember, sometimes the grass isn't always greener. I would hate to have my son go through all those injections (which only last up to 3 months) and have him be worse. He's fine with the limp and so are we, we're just happy to have him here.

Mexico isn't your only option...there's Hawaii and the Bahamas, too! Good luck.
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May u please find info. on cerebral palsy?

New postby Narcisa » 27 Oct 2012, 13:09

May u please find info. on cerebral palsy? May u please find info. on cerebral palsy?
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New postby Magaret » 27 Oct 2012, 13:09

Cerebral palsy is an umbrella-like term used to describe a group of chronic disorders impairing control of movement that appear in the first few years of life and generally do not worsen over time. The disorders are caused by faulty development of or damage to motor areas in the brain that disrupts the brain's ability to control movement and posture. Symptoms of cerebral palsy include difficulty with fine motor tasks (such as writing or using scissors), difficulty maintaining balance or walking, involuntary movements. The symptoms differ from person to person and may change over time. Some people with cerebral palsy are also affected by other medical disorders, including seizures or mental impairment, but cerebral palsy does not always cause profound handicap. Early signs of cerebral palsy usually appear before 3 years of age.

There is no standard therapy that works for all patients. Drugs can be used to control seizures and muscle spasms, special braces can compensate for muscle imbalance. Surgery, mechanical aids to help overcome impairments, counseling for emotional and psychological needs, and physical, occupational, speech, and behavioral therapy may be employed.

We do not know the cause of most cases of cerebral palsy. That is, we are unable to determine what caused cerebral palsy in most children who have congenital CP. We do know that the child who is at highest risk for developing CP is the premature, very small baby who does not cry in the first five minutes after delivery, who needs to be on a ventilator for over four weeks, and who has bleeding in his brain. Babies who have congenital malformations in systems such as the heart, kidneys, or spine are also more likely to develop CP, probably because they also have malformations in the brain.

Cerebral palsy (say: seh-ree-brel pawl-zee) is a condition that affects thousands of babies and children each year. It is not contagious, which means you can't catch it from anyone who has it. The word cerebral means having to do with the brain. The word palsy means a weakness or problem in the way a person moves or positions his or her body.

There are three types of cerebral palsy: spastic (say: spass-tick), athetoid (say: ath-uh-toid), and ataxic (say: ay-tak-sick). The most common type of CP is spastic. A kid with spastic CP can't relax his or her muscles or the muscles may be stiff.
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HELP ! Any info. on Cerebral Palsy, and Tendon Lengthening?

New postby Vannesa » 27 Oct 2012, 13:09

I, need all of your help! My grandson has C.P. from birth. He is 5 years old. He has a spastic condition on the right side. Can any one tell me the PROS AND CONS of tendon lengthening. Also , could the stroke, at birth, be from un-etero condition. Un-etero is when to baby moves over the cord while still in the womb. or is C.P. , which starts at conception, the cause of the stroke. Now , i know alot of you are saying, why dose this old man talk to the DR. answer, Dr.s are wonderfull people, but MEDICINE is a business. When you get down in the trenches, like i am on this heartbreaking subject, i am going to listen to you people first.
For all that answer this question, thanks from the bottom of my heart. I have been through a few to meny wars, and i am running out of time on this one. Be honest with your answers, and info. will be taking to heart. Hurry, PAPA JOHN
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New postby Darrel » 27 Oct 2012, 13:09

Hi,
I know quite a lot about tendon lengthening..
i work with children who have CP.
First of all, I would like for you to try to avoid surgery.
Its invasive, takes a long time to heal, then the tendon will get shorter again with time..However in some very severe spastic cases you can't avoid it. (Surgery is usually can be considered after the age of 10-12)

Try to use botox, for easing the spasticity, and targetting the spastic,shorter tendons, and muscles.Its a shot, lasts for 3 months, then wears off (if you see improvements you can repeat it, if not, no harm has been done)

Active every day stretching will give you slow but nice result. I use sage lotion with my kiddos, as sage is a natural muscle relaxant. Or you can also make a sage bath (almost like making a sage herb tea in the tub) try to make it as hot as the child can tolerate, try to move his limbs and do stretching while in the tub, then do it again out of the tub. (if you let me know where you have this spasticity, i can give you good stretching excercises)

There are two other ways to ease spasticity, but they are invasive. Baclofen pill/ or pump and Selective Dhorsal Rhizotomy. (SDR is irreversible!!!they cut nerves in the spine, personally I'm against it)

Also, proper splinths, footwear, AFO, DAFO, arm gaiters will stretch the tendons, and prevent contractures in the joints.

To answer your question about CP, cp can happen pre natal, post natal, and at birth. Its always a brain injury, due to hemorrage in the brain, lack of oxygen.anything that causes lack of oxygen (i.e cord around neck) can potentially cause CP.
However cp cannot really be diagnosed till parents/neurologist can se the delays in the developmental motor milestones.usually they get suspicious when the baby is around 6-8 months.
Its very hard to predict how these injuries will affect the child, therefore doctors have hard times labelling the kids with CP. Cp has very many types, renging from mild to severe, and sometimes there are mixed types.

Try to do lots of therapies (I know OT and PT often offers only 2x45 minutes a week)
Try to research Conductive-education, and if you have a center near to you. Its a combined therapy method, and offers 5-6 hours a DAY!
Consistency is the key for improvements in individuals with CP, and everyday stretching!!

If you have any more specific questions, please e-mail me to
anci_toth@yahoo.co.uk
I'll be more than happy to answer them.
I hope i helped,
Andrea
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Is cerebral palsy genetic and/or hereditary? any info u...

New postby Alethia » 27 Oct 2012, 13:09

Is cerebral palsy genetic and/or hereditary? any info u can give me i'd really appreciate it, thanks?
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New postby Darcey » 27 Oct 2012, 13:09

Nope. It happens during birth because of lack of oxygen. My ex boyfriend and my current boyfriend have it.
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Need info on Down Syndrome and Cerebral Palsy.?

New postby Felicia » 27 Oct 2012, 13:09

I am the President of Special Needs Advocates for Understanding and need to add more content to our website in the areas of Down Syndrome, Cerebral Palsy and any other disabilities that may be relevant. Please check out our site at http://www.valleysnafu.com under "Downloads and Info". I have several buttons that lead to pages dedicated to certain disabilities. You will see DS and CP pages are pretty much blank. I would appreciate any suggestions to make it better. Thanks!
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New postby Kirsten » 27 Oct 2012, 13:09

There are many organizations and websites you could find easily. Start with the National Association for Down Syndrome: http://www.nads.org and United Cerebral Palsy: http://www.ucp.org
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